tag:blogger.com,1999:blog-7955811312566319788.post981989092244145579..comments2023-11-29T01:44:44.791-07:00Comments on Jason and Deanna's Family: Another updateDeannahttp://www.blogger.com/profile/05919684459271654755noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-7955811312566319788.post-52156309332971368942011-10-24T19:48:51.849-06:002011-10-24T19:48:51.849-06:00UGH!!! I am so sorry!!! I feel for ya, I got so FR...UGH!!! I am so sorry!!! I feel for ya, I got so FRUSTERATED with all the doctors, with Kylie's Fontan & her last hospital stay!!! Their numbers will never be "normal" or where they "want" them!! It made me irriate!!! I am so sorry, I hated the waiting game, oh & dont even get me started on "precautions" GRRRRR Kylie was on that for things she didn't even have or come close to having!!! People didn't want to admit they were WRONG!!! Kylie had prolems with the fluid in her lungs for a long time. Is is good they kept her chest tubes in? Are they draining? I am hoping & praying things start to go a little faster for you guys!!! Hosptial life SUCKS!!! We will be down next Monday for Kyie's appt, I will have to see if your still there!!! We will bring Gracie up a Halloween treat!!! I really am so sorry, I can feel your frustrations & how you feel!! I am glad her cardiologist is behind you, it's always nice when you find someone to back up MOM who KNOWS best all the time!!! Yes we might not have a special paper saying we are super smart!! but we DO KNOW our babies & what will help them!!! Love you guys!!!One Happy Heart Familyhttps://www.blogger.com/profile/08047148321628568770noreply@blogger.comtag:blogger.com,1999:blog-7955811312566319788.post-18310358389614888232011-10-23T22:18:15.949-06:002011-10-23T22:18:15.949-06:00I had to wait a weekend for a swallow study too. I...I had to wait a weekend for a swallow study too. I knew my son could drink just fine but no one was in the office till Monday. It's lame how the regular business routine gets in the way of consuming calories. But hey, at least the docs are all awesome. Good luck to your Gracie!Petersen Palacehttps://www.blogger.com/profile/02712298807647708170noreply@blogger.comtag:blogger.com,1999:blog-7955811312566319788.post-45466697437044455802011-10-23T17:03:20.923-06:002011-10-23T17:03:20.923-06:00Poor girlie! We will keep praying for her. I hope ...Poor girlie! We will keep praying for her. I hope her lungs clear up soon! And good for you to stand up to the doctors! You know more than they ever will about your child.Brad and Haileyhttps://www.blogger.com/profile/06241869813207397850noreply@blogger.comtag:blogger.com,1999:blog-7955811312566319788.post-82341146310951079112011-10-23T15:58:21.337-06:002011-10-23T15:58:21.337-06:00It was good to see you and Grace yesterday. She wi...It was good to see you and Grace yesterday. She will get there. It will just take her a little longer. I hope you got some sleep last night.Ericahttps://www.blogger.com/profile/00586773697102330636noreply@blogger.comtag:blogger.com,1999:blog-7955811312566319788.post-36569385802529011772011-10-22T21:37:54.384-06:002011-10-22T21:37:54.384-06:00Gracie is such a trooper. I'm glad that her Do...Gracie is such a trooper. I'm glad that her Doctor agreed with you. You guys know her best. I hope you are sleeping too.M&Nhttps://www.blogger.com/profile/04990630670228378220noreply@blogger.comtag:blogger.com,1999:blog-7955811312566319788.post-7109070122943264862011-10-22T18:01:25.346-06:002011-10-22T18:01:25.346-06:00awwwww I hope she feels better soon and gets her w...awwwww I hope she feels better soon and gets her water. Is she allowed popsicles? I'm glad she has her Mom to be her advocate.<br />I hope you are resting well Deanna, it's always hardest on Mama Bear.cicihttps://www.blogger.com/profile/15649271487896580761noreply@blogger.com