Still doing good

Gracie is doing well. Her milirone was turned off completely today and the doctors are just watching to see how she will tolerate it. One of the Attendings told me today that it will take a day or two before we really can see if she tolerates it well. Turning her milirone down and off is the only thing that has the doctors have done--they want to take it extremely slow just to be safe and because Gracie has proven to be finicky when more than one thing is done at a time.

The next step is to try and turn the high flow down--optimistically speaking if she tolerates everything well enough, Gracie could move up to the third floor by Thursday at the earliest. Though the thought of being on the floor scares me to death, we are hoping and praying that she will get there soon.

We brought Gracie's swing to the hospital today and she loved it! Hopefully it will help soothe her because right now she demands to be held continuously--the nurses today had to take turns holding her and bouncing her just to keep her calm!!