It has been 7 hours since we left our Gracie girl with the anesthesiologist and all the repairs have been made. Her tricuspid valve has been fixed and is not leaking much now, the sano has been taken down, and the Glenn has been done. We are still waiting for them to be able to close her, there is still quite a bit of bleeding that they are still trying to control and then they will attempt to close.
Though Annie has been the one giving us periodic updates, I ran into Bonnie and she said that Grace will probably stay longer than most because of how long they have had her in the OR. But ultimately it all depends on Gracie and we all know she does things in her own way and timing.
I am ready to see my baby, it has been too long!!! I'm just hoping that they will be able to stop the bleeding and close her up soon. Hopefully we will be talking to Dr. Kourtas soon and then only have to wait 45 more minutes to see her. All I know is they better hurry because I'll be more than ticked if I can't see her till after shift change.
Thank you all for your thoughts, prayers, and positive vibes, they have been felt so much and though it has been a long day, with several bumps we have felt peace and comfort. We will update again after we get to see Gracie.
6 comments:
You are all in our thoughts and prayers. I love you!
So glad to hear this update! We love you guys and are still praying for you guys!
I am glad things are going well. We had to wait for Kylie to stop bleeding too. Funny how they are so much alike. It is later now I hope you are with your sweet Gracie girl now. I think she will fly. Kylie was about the same time. She was about 6 1/2 hours. So don't get down. I know I expected the "NEW" baby everyone said I would have, Well it has been 3 weeks 2morrow and we do have the "NEW" baby, she eats and no oxygen so don't be worried if she is not the same. She will probably be really GRUMPY, I think they all are. Well I will keep you in our prayers and thoughts still GO GRACIE! Lots of Love, Chrissie
I hope and pray that you are with your sweetie and that all is well.
Glad I ran into you for a few minutes and hopefully by now you are sitting by your sweet Gracie's side. Thanks for helping to put things into perspective for me today. Although Eden's liver is getting sicker at least she is still home plugging away. Before long Grace will be too. She is such a fighter.
Erica
I have been wondering how things have been for your family today. Prayers are being sent for Gracie. We have a little boy with an HLHS pre diagnosis and he will arrive in 6 weeks, so it is great to see how other families navigate the struggles! Best to you guys and I hope that you are with Grace now!
Alli Hicken (IHH)
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