Gracie's cath is in a couple hours and though, sleep would be marvelous, here I am wide awake and have been since 4am and we don't have to be to the hospital until 9am!! It took me forever to fall asleep, I just can't stop worrying about all that this heart cath entails. How will things look? Will she qualify for the Fontan? Will she bounce back from this in time for surgery? Can I really hand her over again and trust things will be fine? And the list goes on. Oh, how I hope and pray that things look beautiful and we will be a go for the 18th.
Yesterday was a very cold wet day. It was kind of nice, I'm one of those people who actually enjoying a break from sun, for a dreary day or two. So while Ryan napped, the girls and I made some chocolate chip cookies. Morgan and I always bake together, but this was Gracie's first time. She had fun for about a minute before she kept begging to get down and watch a show. Making cookies was sensory overload for her. Too many textures and sounds that just made her so uncomfortable, I think she thought I was going to make her touch some of the wet ingredients because she had a look of horror on her face. But she stuck it through till the first tray of cookies went into the oven.
hestitant to taste the cookie
Ryan woke up just in time to try a warm cookie!
3 comments:
It is just now about 9am, I am thinking of you, praying for you and Gracie. Peace for you, safety for Grace. I love you Deanna.
You are the sweetest Deanna! Thank you for bringing some of your yummy warmth into my home! I really needed it yesterday! Thinking and praying for you today! Hope it is going well!
Special Prayers for Little Gracie. Please let us know how everything goes. She sure looks great,
so I hope the Doctor says so too.
I also hope you get some great sleep tonight! Remember worry accomplishes nothing ....(but I wasted half my life doing just that ;(
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