I'm sorry for the delay in updating the blog, but yesterday was a very hard, trying, and long day. They took Grace around 2:30pm to take the wires out and close everything up completely, and weren't done until 4:30pm, but we weren't allowed to see her until around 5:30pm. When we finally went back, we found several doctors around her trying to stabilize her and find out why she wasn't oxygenating well enough.
After doing an echo and not finding anything, the attending mentioned that there was a chance that they would have to do a heart cath on her to see if the sano that they put in her heart was compressed. If it came down to having a heart cath done, it would be a risk just to get her down to the lab because they would have to transport her and all of her meds and vent. Plus she would be exposed to more germs which possibly could affect her infection. Then we were informed that if the sano was indeed compressed the only way to fix it would be opening her chest again and basically starting over (at least that's how we were feeling at the time).
Our nurse however informed us that sometimes this happens after surgery so maybe with time Gracie would improve. So we left for shift change at 7pm and found a place to plead with God in Grace's behalf. When we went back to the room an hour later things were improving slowly, but improving none the less. By 10pm she seemed to be steadily moving forward (slowly) and we made the hard decision to come home, having the assurance that if anything went wrong we would be called immediately. Though the surgeon told us it was going to be a long and rocky night, each time we called Gracie was doing ok. And to our delight she continued to do alright throughout today, that even our surgeon said he was pleased with where she was at and that she was doing good!!!
It was such a blessing to see her finally have a good day. Grace came off of the paralytic and I was able to see my sweet baby come back to life...have eye movement, try taking her own breathes, and eve begin to pout when things were being done that she didn't like. Grace is no why out of the woods and is still considered critically stable. but it is so nice to see her improve and rest. The biggest things she is struggling with is holding on to her oxygen levels and holding on to CO2. So we are hoping and praying for a great night, with nothing too eventfully happening.
After doing an echo and not finding anything, the attending mentioned that there was a chance that they would have to do a heart cath on her to see if the sano that they put in her heart was compressed. If it came down to having a heart cath done, it would be a risk just to get her down to the lab because they would have to transport her and all of her meds and vent. Plus she would be exposed to more germs which possibly could affect her infection. Then we were informed that if the sano was indeed compressed the only way to fix it would be opening her chest again and basically starting over (at least that's how we were feeling at the time).
Our nurse however informed us that sometimes this happens after surgery so maybe with time Gracie would improve. So we left for shift change at 7pm and found a place to plead with God in Grace's behalf. When we went back to the room an hour later things were improving slowly, but improving none the less. By 10pm she seemed to be steadily moving forward (slowly) and we made the hard decision to come home, having the assurance that if anything went wrong we would be called immediately. Though the surgeon told us it was going to be a long and rocky night, each time we called Gracie was doing ok. And to our delight she continued to do alright throughout today, that even our surgeon said he was pleased with where she was at and that she was doing good!!!
It was such a blessing to see her finally have a good day. Grace came off of the paralytic and I was able to see my sweet baby come back to life...have eye movement, try taking her own breathes, and eve begin to pout when things were being done that she didn't like. Grace is no why out of the woods and is still considered critically stable. but it is so nice to see her improve and rest. The biggest things she is struggling with is holding on to her oxygen levels and holding on to CO2. So we are hoping and praying for a great night, with nothing too eventfully happening.
3 comments:
Hooray for good days! I hope today was just as good. She's a fighter. You can feel it when you're in the room with her. She's not going to give up...
I offer prayer for you from far away. Rest in the prayers offered on Grace's behalf. Allow the power of prayer to lift you, to support you, to surround you, to comfort you, to inform you, and to hold you close beneath His wings. Claim the power of prayer to heal her, and to guide the insight, knowledge and instincts of the doctors and nurses who provide her care. Dwell in peace in the knowledge that He is in control. Let yourself fall into the arms of the One who loves each of you with unfathomable grace and love.
After all that she has been through, she still looks SOOOO adorable! I can't wait to see her!
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