Gracie Update

It's been a couple of days since I last posted about Gracie. She is doing well, not as cranky as she has been--I think she is finally feeling more like herself now that she has adjusted to being off the ativan, unfortunately now we need to wean off of the methadone. We've started and other than extreme sweaty spells she is doing ok.

Her chest looks great. The plastic surgeon is pleased with how good it looks. Here are before and after pictures.

Tomorrow we are going to the Ear, Nose, and Throat doctor to check Grace's ears. It seems that there is fluid in her ears, we found this out when she had her sedated echo. Audiology came and did a more in depth hearing test and Gracie showed to have a moderate hearing loss--so I have been hoping and praying that all that is related to the fluid in her ears.

While we were in the PICU, she was so sensitive to sound so I didn't even think her hearing was a problem. Just the move from our private room to out in the open was a hard adjustment because of the increase in noise...

Other than the ENT we don't have another doctor's appointment till November, we go to cardiology on Nov. 24th. I hope that she does well until then. I told the doctors I wanted to be home longer than we were in the PICU before Gracie has to go back in for her next surgery---so that means we have to make it till December 27th--88 days home.