Friday, August 31, 2012
I've got no strings...
Gracie can go without having to wait for someone to carry her oxygen behind her. She can swing without being slowed down by the dragging oxygen tube. Gracie can play hide and seek and not be found by following her oxygen. And the list goes on.
Today was the first time, since Gracie has been mobile, that she hasn't been frustrated by how much she was being limited by the oxygen. Seriously the normal melt downs and whining that we hear were gone today. I know she misses her oxygen, but Wow. This has been monumental!!
Its a little humerus watching her look for her oxygen and making sure she isn't going to trip over it. She still wants it back if we ask her if she rather have it on or off. But she is doing great!!!
So her sats have stayed mostly between 84-92 throughout the day. We are checking her every couple of hours and she is doing great!! There has only been a couple of times today where she was in the low 80s, high 70s but within an hour she jumped back up.
Tomorrow I think we are going to attempt our first outing tube free. I can't wait to see her run around the gardens and being able to go where ever she wants! Lets hope I don't lose her.
I wish I was more eloquent so that I could fully express my feelings and emotions surrounding this new change. I mean Gracie has just had so many doors and opportunities opened to her just because the oxygen is gone. We are in heaven!!
at 10:32 PM