Well, we are very disappointed that we will not be going to the floor anytime soon. When we got to the hospital today we found our little girl on regular nasal cannula!!! She is doing great and is even on 1 liter, tolerating bolus feeds and even nippled 9 cc first feed. So I strongly persuaded and fought hard and won---we are going home from the PICU tomorrow!!! Yes after two months, 8 1/2 weeks we are going home, it is very surreal and overwhelming, but I'm so excited.
The Attending on spooked me a little because he was hesitant to send Grace home, considering her history, but I know she will be fine and we could always come back if we need to. Plus there are several nurses who said that I could call them even at home if I need to. But really Gracie is doing great.
I'm sorry if this post is a little jumbled, I just can't believe we are bringing her home tomorrow!!