Monday, March 1, 2010

Gracie and her trial off oxygen.

the girls with our friends--the Tavernaris from Brazil

Life has been so crazy for us, hence the lack of posts. We are all doing well and looking forward to some warmer weather and some very fun family trips in April. The first week of April we will be traveling to Southern California, we are going to both Disneyland (thanks to the Give a day of service, get a day at Disney) then we'll be heading down to Sea World in San Diego. We are so excited to finally travel as a family and make some great memories with our girls.
Morgan is great. She is at the inquisitive stage, everyday we get asked thousands of questions. Why do we have bones? Why does Jesus live in Heaven? Why do we have a belly button? Why are you doing that? etc. But the majority of her questions lately have focused around Heaven and who gets to go there, when do we get to be there, etc. Perhaps the most tender moment for me was when Morgan looked at me and said, but mom I don't want to die and go to Heaven. Silently praying, I told her she didn't have to worry about that, she still had a long time here on Earth. Then she said, I don't want Gracie to go to Heaven soon either....heart wrenching....what do you say to that?

Though there are times where all we want to do is tape Morgan's mouth shut, oh how we love her voice, her sweet loving nature and the amount of love and adoration she has for life.

Gracie is doing wonderfully well. She is jabbering all the time and is communicating in her own ways. She screams when she wants something and when she has done something that she is proud of or wanted to do she shakes her head yes in satisfaction. Gracie is now blowing kisses and waving and saying bye bye.
Gracie has decided that she doesn't need oxygen anymore and frankly we are at our wits end on trying to keep it on her face. We have tried everything apart from super gluing it to her face. After she pulled the oxygen off completely on Sunday, I hooked her up to the pulse oximeter to see how she would do on room air. I seriously was considering just keeping her off of it during the day, but I can't make that decision without guidance from her cardiologist. Especially since her sats are borderline acceptable, but who knows maybe her doctors will think differently, we have an appointment at the end of March.

I have videos I want to post, they just won't upload tonight. I'll try again tomorrow.


Michelle said...

Your girls are GROWING!

Can't wait to see them!

Ginger said...

Morgan looks so much older in those pictures! And Gracie too in those first pictures! What cute babies you have!!! Someone at our house has been sick for what seems like forever, but soon hopefully we can get together again!

Larissa said...

Your little girls are just SO beautiful, Deanna!!!! I admire you and your life and all you do so very, very much. I love you!