All day long we have been preparing for Gracie's cath tomorrow. We have to be at the hospital at 8am, for a 9:30am procedure. She will be staying the night, we just don't know where yet---she is scheduled for the third floor, but I don't really feel comfortable with that. I hoping that there is a possibility for her to go to the PICU--with Gracie you can never be too careful!!
I wasn't extremely scared or nervous until today, I realized that for her two previous caths she was in the PICU and our favorite nurse went with her. Knowing she was with Gracie there watching her made me feel so much more at ease. But tomorrow she will be on her own, I wish that I could request a personal nurse to sit there and be my eyes....but I can't.
We took Morgan up to my in-laws house to spend the night so we wouldn't have to wake her up in the morning and on my drive back I started bawling. Tomorrow is so hard...we have been home for three months and going in for a surgery just makes it seem like everything is going to go down hill from here and she will be on rocky ground again. I know she is always going to be fragile but having her home we are able to focus on Gracie and not her medical condition.
On a different note--Kids on the Move came by again yesterday and were amazed at the progress she has made. Gracie is now drinking an ounce every feed consistently and half the time will drink an ounce and a half to two ounces!! Way to go Gracie!! If we weren't preparing for surgery and needing to keep her weight up I would try feeding her just orally every two hours like you would a newborn.
Grace is also holding her head up well and building her arm strength slowly. When on her tummy she can hold up her head for 10-15 minutes without dropping it. She certainly is a fighter and so determined. I know with all my heart we are going to have her with us for a long long time--she is too stubborn and driven to give up and be beaten. Does she sound like someone else you may know?
She hates it and looks like she is telling us--keep me in her one more minute and....
We will keep you all posted as to how Gracie does after the cath and the results. Please keep her in your prayers, I know we can't do it without you all.