Tuesday, September 23, 2008

Moving on up...

Sorry I can't help but post pictures of Gracie, she's so cute and as a reader of other's blogs I enjoy it better if their are pictures!! Hope you don't get tired of seeing this cute little face.

Today was a good day for our little Gracie. She had her swallow study (a test done to see if she can protect her airway so that she won't aspirate into her lungs) and she passed!!! She did have some reflux that caused the drink they give to come back into her nasal cavity, but it didn't come out of her nose--it just came up and then went back down her throat. So they have moved the feeding tube from her intestines to her stomach and will now be helping her learn how to drink from a bottle. Gracie will only start off with 5 or 10 cc a day by mouth but hopefully with practice she'll do great and even start gaining weight so I can try nursing her.

So provided Gracie does well tonight we will be moving to the third floor tomorrow--just writing those words brings tears to my eyes. For so long our goal was just to keep her alive from day to day that moving her to the floor wasn't even a consideration. Now our sweet little fighter is doing so well we are even talking about bringing her home next week if things go well. Miracles really do happen and Gracie is living proof--really how could anyone survive what she has gone through if it wasn't for a loving Father in Heaven who strengthened and cradled Gracie during those rough times.

Many people told us that most heart babies don't like to be held or touched because of their experiences but Gracie absolutely loves to be held and cuddled. In fact she demands it, all of her nurses can will tell you that they have had to hold Gracie just to keep her calm and relaxed (not that any of them complained). Anyways I wonder if she loves being held so much because even once she was born, Heavenly Father wrapped his arms around my sweet baby to nurture her through her 10 major procedures and all of her many complications. What an amazing image!!

Thank you all for your help, support, love and prayers. For those of you who have helped with Morgan--thank you--I don't know what I would have done if I didn't have wonderful friends and family to care for her so I didn't have to worry so much about her and who cared for her.

5 comments:

Gourley Fam said...

We are so happy for her! It just made our year to be able to hold her and have her happy to do so! She was so sweet-it was hard to leave! We love Morgan and love Gracie so much! We have the two cutest nieces in the world!

Erica said...

Congratulations!!! It is indeed a miracle that Grace has been through so much and come so far. Heavenly Father has been watching over her. Good luck on your move up to the floor.

Oliver and Megan Hansen said...

I'm so excited for you! I didn't realize that moving to the floor could mean coming home so soon!! You're daughter is amazing!!

Melanie said...

I know it has been a bumpy path so far, but this is just wonderful! I love reading the updates and hearing the love and blessing she is in your family! I pray that the transfer will go smoothly.

Kimberly said...

I am so happy for all of you! That is an amazing accomplishment! Let me know if there is anything I can do. Little Gracie is an inspiration to us all. She will continue to be in my prayers. XOXOXOXOXO