Tomorrow will be a busy day for our little Gracie, she didn't end up getting the PIC line put in today because of the holiday, so that will be done tomorrow as well as the heart cath. We hope that everything goes as smoothly as they can go with very little bumps and setbacks. After speaking with Grace's nurse we realized even more how necessary the cath procedure is but also how frightening and risky of a procedure it is. The good news is that if there is anything wrong with the placement of her sano and they can repair it in the lab they will--the doctors and surgeons, like us are trying to avoid another heart surgery at this time. We don't know what time she will be heading to the lab, but please keep her in your thoughts and prayers.
It has been a long hard road for our girl and we hope and pray that it will get better for her. When I am with her I can't help but sit by her bedside and stare at her and into her eyes when they are open, I see so much fire and strength. I know that Grace isn't done fighting, but it is so hard. There are so many times where I just want to scream and rant and rave how unfair it is for my baby and others who have suffered and are suffering with the same condition. Sometimes it is so easy to lose faith and hope but then I remember to see all the progress and good things our Gracie has going for her.
Please continue to pray for our little girl that she will make it and one day we can look back at this time with gratitude for all that it taught us. There are so many that want and NEED this little one to make it.