Gracie had a big and busy day today, at 11am Grace was intubated and then her chest tube was pulled. We then went down to MRI heavily sedated and even getting a continuous drip of precidex she needed more Rock and kedamine by the time she got down stairs and was lifted on the MRI table--what a little drug addicted baby she is! We then came back had her TEE, and then an ultrasound of her entire chest searching for clots, we then allowed for the sedatives to wear off and extubated her, what a day!
So the results, there is no vegetation (infection) in her heart and no blood clots, therefore there is still no explanation for her fevers and none of her cultures have come back positive yet. Who knows maybe her fevers and increased agitation are results of teething or a cold, though I think there really is something more going on, we may never know.
The MRI showed that Gracie has some veins running along her spine that slightly more enlarged and taking more oxygen away from her heart because blood flows in the path of least resistance, so the plan is to plug these veins with titanium coils in a hope that she will better oxygenate and be able to be successfully weaned off of the high flow. As of right now the plan is to go to cath lab to have this done on Friday, provided nothing grows out of her cultures and/or she has more fevers. Hopefully this solves the problem and hopefully she does wonderfully through the cath and there are no complications, there is actually hope that Grace can be home within two to three weeks.
Thanks for checking in and keeping Gracie in your thoughts and prayers.