Today has been better and I just didn't have the energy to post, sorry. I know many people are praying for Gracie and looking for an update.
Last night we finally left Gracie's side at 4:30am and tried to get some sleep. I called for an update and she was stable, her pressures still were higher than they wanted but it was to be expected because of how puffy she is. They did put her on nitrogen gas to help her lungs and hopefully lower the pressure the vent has to pump into her lungs, she still isn't as strong in her lungs as they want her to be.
The major task is to get the extra fluid off of her, this morning she was over 300ccs fluid positive---basically all the blood and products they gave her last night is now in her tissues causing her to be extremely puffy. Though the doctor thinks space isn't an issue, he doesn't want to close her chest until she looses some of that fluid. So the plan is to clean her up tomorrow afternoon and hopefully close her too.
Grace's heart function is still looking good so that is good and other than tweaking pain meds and glucose levels it has been a quite day. Hooray. Kind of a cute story...around 5:00pm, I turned to our nurse and said that i needed to go for a walk and literally Gracie's heart rate went from 140 to 190, we increased her pain meds and still no progress, I started singing in her ear, both the fellow and attending came in and finally after 20 minutes her heart rate began to drop. It was like she got upset and mad when I told her I was leaving for a bit. Oh how I yearn for my baby to be back, I miss her so much. It hurts so much to leave her side, to not be there with her....
Thank you so much for your love and prayers.