One of a the key phrases with heart kids is that they can change so fast, I have felt that has always meant that they could crash so fast so we always need to be on our toes with our little Gracie---but it can be something positive! Gracie has improved remarkably fast from Monday and continues to do well.
The nitric gas was turned off yesterday and she is tolerating that well. Today they have started to slowly wean the vent settings and she is doing ok, she is still a ways from being extibated especially since she is still letting the vent breath for her completely when she is asleep, but she is progressing.
Thank you all for your prayers, fasting, and thoughts in our behalf and especially for our sweet Gracie. I know that prayers are answered and that Heavenly Father is continuing to bless us with our sweet girl and many miracles that keep her here with us.